Wednesday, November 11, 2009

Armistice Day



This is my paternal great grandfather, John Ulrich Fauster, MD. He emigrated from Schaffhausen, Switzerland, late in the 19th century (his family tatted lace to make the money that they used to buy steerage over to America) but was a US citizen by the time World War One began and he served in the US Army. I have no idea in what capacity. He was the doctor in Defiance, Ohio, a small town in northwestern Ohio, where I grew up. I wonder if, given his profession, and the fact that he was perhaps one of a very few doctors in the area, he was allowed to leave. He also had 5 children at the time, although at least one was over the age of majority.




This is my maternal grandfather, Claude Frederick Holst, MD. His family had emigrated from northern Germany to the US in the late 1800's as well. They dropped the "von" that had been the prefix to their surname to better fit in in the New World. He also served in World War One, and I know from stories that my grandmother told me, that he was sent by the military to someplace other than Little Falls, MN, where he was working with his brother, Burton, as the town's doctors. My maternal grandparents had only been married a short while before he was sent off. My grandmother had come, after graduating as the valedictorian of her nursing school class at Marquette University, to Little Falls to start a nursing school at the hospital there. My grandfather was quite a bit older than my grandmother (who had actually lied about her age to get the job), but something clicked and they married in June, postponing their wedding to assist in the aftermath of a tornado that hit somewhere near Little Falls. Or so I was told.




This is my paternal grandfather, Seth Cullen. He's the tall guy on the left with the friend that looks like George Costanza. He was from Paulding, OH, and served in World War One, shipping out right after marrying my grandmother. He rode ambulances in France, on the outside at night, so he could direct the drivers, as they could not turn their lights on because they would be shot at by the "Jerrys." I read about this in the letters that he sent home to his parents. I found the letters in 1981 when I was back in Paulding for the funeral of his sister, my great aunt, Bernice Cullen Sullivan. I gave the letters to my grandmother and she threw them away. I will always kick myself for doing that. She had her reasons for discarding them, ones I discovered later after she died, when I inherited a five year diary she kept in the early 50s. They deserve a thread of their own someday. When Seth returned from France, he brought silk aprons for his mother and sister and a beaded evening bag for his wife. The apron he brought home for his mother is such a work of embroidery art that I had it framed and it is on one of the walls of my bedroom.



And this is my father, John William Cullen. He was drafted and served as a medic in the Army during World War Two. He was never sent abroad because his eyesight was too poor. Instead, he was stationed in South Carolina where he met a young woman he became briefly engaged to, but it broke up for reasons he never mentioned. Although he did say that her house had a separate entrance in the back for their black servants, which he found off-putting. After the war was over, he finished college at Miami University, went to medical school at Case Western, and met my mother while both were working at Yellowstone Park in the summer of 1950, and voila!

These are the veterans in my family. I remember them today and thank them for their service to our country.

Monday, November 09, 2009

"Thank you" does not fully cover it




On Sunday the husband of my friend, D, from work, and five of his friends came over from the eastside and cleaned up my yard in a very major way. They did this in 3 hours. It was an amazing gift.

They showed up at 10 am to my house armed with blowers, rakes, and other gardening implements of destruction. It sounded a bit like WW3 as motors were revved up, leaves were put in their place, weeds were pulled, dirt was hauled, roofs were cleaned, a fence was pulled, and trees and shrubbery were trimmed.

My youngest joined in the melee, going back to the store for more lawn bags when needed. He was quite taken with the efficacy of the blowers--plus I think the noise made it a 'guy' sort of thing as well.

They broke halfway through for Noah's bagels and Top Pot donuts I had picked up earlier in the morning together with hot cider and/or coffee, then it was back to work. By 1 pm they loaded everything back in their trucks/cars, we took the attached photos to celebrate, and they went off to the Roanoke to watch the Seahawks victory on television. And left me 16 lawn bags, 4 large garbage containers, and my yard waste container completely full. It was truly a thing of efficiency and beauty. I kept going out to the front of my house after they were gone to marvel at how clean and trim it all looked. Even in the dark it was a wonderful sight.

Thank you guys. This was extra special.

Thursday, November 05, 2009

Thrush




Of course, the attached picture refers to the avian variety, not the physiological kind that appears to be the culprit in the continuing throat discomfort that I am experiencing. I won't post a picture of what the infection actually looks like, preferring the more musical reference instead. But it was apparent enough that my oncologist at Group Health didn't even do a culture to confirm, once he looked into my throat.

According to wikipedia, thrush's scientific term is candidiasis and it is a fungal or yeast infection. The last time I remember coming into contact with thrush was when the kids were babies. It was a condition that developed when they were nursing. Luckily they don't remember that time at all.

So I am on an anti-fungal, nystatin, that I get to swirl around and hold in my mouth every 6 hours. Apparently this is a side effect of the steroids that I was taking early on in the chemo cycle. We will hope that the cure is quick.

Wednesday, November 04, 2009

A lump in my throat




Over the past few days my throat has become a bit more inflamed and swollen. Not sure why, perhaps it's my stupendous weight loss program, but I am going in to have the oncologist check it out tomorrow. It constantly feels like I have a small platform resting on my esophagus and swallowing is a bit more difficult. I just don't want it get worse.

Monday was the worst day so far in this journey. You know it's bad when you can't finish brushing your teeth for fear of an eruption. I know now what to expect for the next round of chemo and maybe will request to be knocked unconscious for the first day without steroids (small, wan grin). So maybe the trolls didn't win but they scored deeply.

Monday, November 02, 2009

Down the Rabbit hole


Well it's been 4 days since the administration of the chemotherapy and this stuff is not for sissies.

I've had some good times this past weekend with friends who flew in to visit me from Denver, Kentucky, and even my friend from Klickitat County, but it all comes with a price tag. I had dinner with all of them at the home of another couple, both Saturday and Sunday and it was great fun, but very very draining. Still, I appreciated the love and effort they made to come see me. We're vowed to meet again in two years when things will be better and I can join in the touristy fun like seeing the Troll in Fremont as well as the statue of Stalin. And a ferry ride and going into the mountains to see the colors. Lots of things left to do.

As it is, I have a troll of my own in my gut. It keeps me constantly aware of my stomach and how I am feeling, which is not very well. I have a constant metallic taste in my mouth, the aftereffect of the platinum in the cisplatin chemotherapy and things just do not taste the same. Last night I woke up at 2:30 and could not return to sleep because, in part of the nausea, and finally took an anti nausea drug, which enabled me to sleep fitfully for an hour or two at a time. One of the side effects of the anti nausea drug, however, is constipation. So I am trading one problem for another. I've never used it before, but I have a large, industrial sized bottle of milk of magnesia on the side of my sink in the bathroom. It may be time to take out a troll or two...

Friday, October 30, 2009

Wherein Truffle earns her moniker




Okay, so today was a bit draggy. In fact, I even went back and took a nap in the afternoon. The anti nausea oral meds worked up until about 11, when I started feeling queasy and popped another one. However, they've only given me enough meds to last me through tomorrow and that is making me nervous particularly because I can aspirate any vomitus so easily given the permanent open position of my vocal cords.

I emailed my oncologist's office late in the morning, but have not received a response. I called the consult nurse late in the afternoon and they were able to refill one of the Rxs but not the other one. So I will have to find a friend to go to GH Northgate tomorrow to pick it up for me.

In the meantime, my youngest dog was making a nuisance of herself. Somehow a box of Mrs. See's chocolates had been left on the coffee table in the living room, unknown to me. When I got up from my nap, I kept hearing this nose snuffling and ruffling of papers coming from there. Further investigation showed that my little 8.2 lb puppy, Truffle, had knocked the box down from the coffee table, manage to chew the lid off and either had daintily eaten several...truffles....or had licked a fair number of them. A quick call to my vets, NE Veterinary, which is just around the corner from where I live, thank goodness, got me in to an emergency appointment at around 4pm. We showed up with the box as Exhibit A and Dr. R and his vet tech took a look at puppy and box and decided that she Should just be kept under close observation and not made to vomit. Which, I can tell you eased my insides considerably. Because I am afraid of the cascade effect.....

So I perambulated home with Truffle in tow, stopping to play with Alice the next door golden retriever, and to greet another attorney, also named L, from work, who was bringing me more gifts and work related items so I can continue to work from home. Good to get out of the house during a period of relative warmth even though it was between rain showers. But this is Seattle in the fall, and we take what we get.

Thursday, October 29, 2009

End of the First Movement


The chemotherapy went without a hitch. The 3 anti nausea drugs they used worked, although I am becoming slightly queasy right now, perhaps a function of the time.

The use of the chest port certainly made things easier. The needle that they used has a barb on it, like a fishing hook. Luckily my skin was slightly anesthetized before it went in and afterward, felt nothing. Although there is an ache in that area right now. They began with some anti anxiety meds followed by anti emetics and a large bag of IV fluids before they even began with the chemotherapy agents. The pemetrexed came first. Then more IV fluids followed by the cisplatin. And more IV fluids. The nurse, V, was from New Zealand and we had several delightful conversations about her country, as I had been planning to hike the Milford Track or Trek this coming January with my friend T from Honolulu, until the cancer intervened. V will be taking of for quite a spell of time in December and part will be a visit to New Zealand. I am envious. But it's merely a postponement.

My friend, A, drove me to Group Health, and my friend, D, joined us about a half hour later in the infustion ward. And they both stayed with me the entire time, ~ 6 hours, and kept me wonderfully entertained. My daughter showed up after she had completed her all-night rotation at UW hospital. She was present for the visit by the oncologist, then left to attend a meeting outside the hospital, but later came over for dinner, which was cheerfully and graciously provided by L, an attorney in my office.

I am deeply tired, but also don't want to sleep because it feels really good to be done with a procedure I've been dreading for quite a while. It has been a very intense, but quiet day and I am glad to have it behind me. But it is just a start.