Well, it looks like things are worse than originally thought. Although it did not show up on the MRI (generally just big things show up), it appears that I have a 'dusting of cancer cells at the base of my spine on the cauda equina, where all the nerve endings that deal with the legs come out.
And, it appears, based upon observational symptoms alone, that the cancer has invaded my cerebrospinal fluid. This is a very difficult thing to treat because chemotherapy to the CSF would have a significant impact on my quality of life. So no more chemo, but I am receiving 5 rounds of radiation in the saddle back area to try to relieve symptoms such as pain. I now wear a pain patch and use additional pain drugs when there is break through pain. Wish I had better news.
Wednesday, April 04, 2012
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10 comments:
Aw, Moe. Hope the radiation lessens your pain and keeps you mobile. Think of the Fort Lauderdale sun on your back. - Minnie
My thoughts and prayers are with you Regina.
Oh, Regina. All my prayers are heading your way. You are my hero. Hope they can take the pain away.
Love,
Olive
This stinks. Nothing better to say about it, though I am glad they are able to help you get some relief from pain.
I hope you have something that gives you pleasure to do every day. I pray you are not in pain. I am up very, very late at night if you ever need someone to talk to, or a sparring partner. Easy win for you as I'm not good at sparring! :) XO, Bonnie
Cancer sucks. It just...sucks. I am sorry to hear this news - all I want to say is, screw cancer. Screw it. And love to you.
Regina:
Very sorry to hear this news, but hope the radiation and pain meds help.
And you have prayers from here in Chicago.
Pam
Ditto all of the above. That just sucks. I'm so sorry that you have to go through all of this. I'm sending positive energy and prayers your way. I hope the pain meds are working for you.
Love and strength and strong thoughts being sent your way.
Oh Regina. (I've been reading your blog but have had trouble proving I'm not a robot.)
You are in my thoughts and prayers. I fear the news you are now confronting, and wish you strength, courage, relief, and bursts of happiness where you can find it.
Jazz (from GRACE)
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