This morning, having heard nothing about the ALK rearrangment test, I emailed Dr. M at Seattle Cancer Care Alliance, rather than contact Group Health. This was because I have not yet received any word from Group Health about the EGFR test, and those results were available last Friday. So I figured that if they had not reported to me something that was available almost a week ago, they probably would not have the test results for the ALK testing.
Within a half hour of my email, Dr. M called me back. Unfortunately the ALK test was negative. For me to participate in the clinical trial, it had to be positive. I asked Dr. M, when the test results had come back. He said on Tuesday. But, again, I had and have received no word from Group Health on the results of either test. I have no idea how long I would have had to wait to get the results from Group Health. But it is clear that they did not contact the UW to obtain the results.
So I am back at the begininning, with no treatment plan. And back with a health care provider that has been incredibly unresponsive, one that I do not trust to look our for my best interests.